Social Isolation and Motor Neurone Disease
I want to discuss the touchy subject of social isolation among people with terminal illnesses, especially Motor Neurone Disease. I've been feeling socially dead for quite some time now, although I understand that not everyone may feel the same way. Perhaps some have a great support system or other reasons for not feeling this way. In 2021, I thought everything in my life was going great until I received the diagnosis at 34 years old. When I first got my MND/ALS diagnosis, I withdrew from the world. I didn't see or speak to anyone for quite some time. It was my husband who shared my diagnosis with our friends and his family, which I didn't mind because I didn't have the energy to explain it without getting emotional. However, I had to tell my own family. It was hard to explain what MND to them because they had never heard of the illness before. At that time, when I told them, I still looked "normal," so they didn't really understand the seriousne