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Terminally Well

Embracing Life's Journey

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The People Who Carry Us

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When Did I Become My Illness?

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Redefining Independence

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The Fine Line Between Husband and Carer

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February 25, 2026

When Friendship Changes After Illness

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When Illness Makes You Invisible

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Three Years Into ALS

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©The experiences shared here are personal and are not medical advice.

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Ally: I was diagnosed with Motor Neurone Disease (ALS) at 34 in 2021. At first, I thought life would shrink into something defined by illness. But even with a terminal diagnosis, life doesn’t stop... it just changes shape. Terminally Well is where I share the reality of living with MND. I write using an eye gaze computer, so every word takes time and every word matters.

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